CHERUBS - Congenital Diaphragmatic Hernia Support Forums

Congenital Diaphragmatic Hernia Forums

Over 100 different forums. Over 3100 members. Over 56,000 posts.

CHERUBS CDH Forums are the place to be for Congenital Diaphragmatic Hernia support and information.    Run by and for families affected by CDH, our forums are a 24 hours a day, 7 days a week source of support and friendship for our members.   Parents can learn what to expect while pregnant or learn about different issues and therapies.   100's of families have made friendships within our membership that will last lifetimes and some have taken friendships and information to forum their own groups and charities.   Nowhere else on earth can you find more compassionate, educated and determined CDH families than at CHERUBS where our only mission is to help those affected by Congenital Diaphragmatic Hernia.

Unlike social networking sites like MySpace and Facebook, our forums are 100% confidential. You can relax and talk and be yourself and cry and vent - without worrying that family, friends or strangers are viewing.   Unlike listservs like Yahoo and Onelist, our forums are 100% safe.   There is no selling of your information, you will not start receiving spam junk mail.   New memberships are indivually scanned and approved to keep drama off of our forums.   We provide a safe, comforting, drama-free environment for all CDH families.

With membership, CDH families also receive free on-line photo albums and blogs to share their cherubs with the world.

Join Our Forums - membership is free!

Registration Agreement - there are a few rules everyone must follow to keep the forums safe

Only 5% of our forums are public so make sure to sign up to see all the great information and support! Membership is free.

There is an approval process which can take up to 48 hours so make sure to fill out your form thoroughly to speed up the process. All information is 100% confidential and is not given or sold to anyone or any other group or business. We value our members' privacy and safety, which is why we verify each new member. Information on your membership form is also used for CDH Research so you not only get wonderful information and support but you help CDH research as well!

CHERUBS FORUM INDEX

All forums are private unless indicated (Public)

News & Events

CHERUBS News (Public)

In The Media (Public)

CHERUBS Conferences & Get-Togethers - Private chit-chat between our members about event attendence plans

Web Site News, Questions, Issues, Etc (Public) - Web site updates, issues, additions and general web site news.

CHERUBS Conferences & Get-Togethers (Public) - National & International Member Conferences as well as State and Local Get-Togethers

How You Can Help

Awareness Activities, Fundraisers, Angels for CHERUBS and more! (Public) - Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

Adopt A Hospital Program (Public) - Help CHERUBS to help CDH families by Adopting a Hospital in honor / memory of your cherub

HOPE Totebag Program (Public) - Help families of babies affected by CDH by helping CHERUBS provide information and support items through our totebag project

CHERUBS Member Input - Polls, helping us with printed materials, donation lists, new siblings, etc

Meet Our Cherubs

Stories of Cherubs (Public)

Stories of Survivors (Public) - Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.

Stories of Cherubs In Heaven (Public) - Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.

Meet Other Parents

Introductions - EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

Meet Other Parents Expecting Cherubs - Forum for parents Expecting CDH babies

Meet Other Parents of Surviving Cherubs - Meet the families of other surviving cherubs
Older CDH Survivors - Meet other adult survivors of Congenital Diaphragmatic Hernia

Meet Other Grieving Parents - Forum for those who have lost their cherubs

Parents Who Chose To Let Go Early - A judgement-free place for those that chose to terminate a CDH pregnancy

Dad's Place - A place for dad's to talk about CDH or sports or whatever they want.
Grandparent's Gathering - Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.
Kid's Korner - Place for kids 10 and over to talk to other cherubs and siblings.

Expecting Babies After CDH - Having children after having a child with CDH

Trying To Conceive - Trying to have another baby after dealing with CDH (survivors & non-survivors)

Marriage & Relationship Issues - Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

Inspirational Words - Inspirational stories, quotes and poetry. Please reference authors!

Prayer Requests - Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

Non-CDH / Miscellaneous - For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.

More Medical Info & Support

In Utero Procedures - For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

CDH & ECMO - Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

Feeding Issues - Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

Developmental Issues - Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

Long Term Pulmonary Issues - Dealing with asthma, lung function tests, vent or oxygen dependency, and other lung issues.

CDH & Syndromes - Dealing with CDH and syndromes or chromosomal abnormalities

Multiple Births - CDH within mulitples - twins, triplets, quintuplets, etc

Other Medical Issues - Dealing with chest pectus, scoliosis, allergies or any other medical issue

CDH & Growing Pains - Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

More Than 1 Cherub - Families dealing with more than 1 CDH baby (2% odds)

Medical Care & Insurance Praises / Comments - Parent opinions on hospitals / doctors / nurses and other medical care providers.

Other Conferences - Medical conferences, grieving parent conferences, etc

CDH Research

Research Studies (Public) - Research Studies actively recruiting CDH patients / families

CHERUBS CDH Research - CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.

Research Links - Links to research papers on CDH

Research Papers - Research papers, articles, and more - also see Research Links!

Local CDH Support - States & Countries

United States- For members in the United States

Northeastern USA

~ Northeast USA - forum for all members in the Northeastern United States

Connecticut - forum for members in Connecticut

Maine - forum for members in Maine

Massachusetts - forum for members in Massachusetts

New Hampshire - forum for members in New Hampshire

New Jersey - forum for members in New Jersey

New York - forum for members in New York

Pennsylvania - forum for members in Pennsylvania

Rhode Island - forum for members in Rhode Island

Vermont - forum for members in Vermont

Southern USA - South United States

~ South USA - Forum for all members in the Southern United States

Alabama - forum for members in Alabama

Arkansas - forum for members in Arkansas

Delaware - forum for members in Delaware

Florida - forum for members in Florida

Georgia - forum for members in Georgia

Kentucky - forum for members in Kentucky

Louisiana - forum for members in Louisiana

Maryland - forum for members in Maryland

Mississippi - forum for members in Mississippi

North Carolina - forum for members in North Carolina

Oklahoma - forum for members in Oklahoma

South Carolina - forum for members in South Carolina

Tennessee - forum for members in Tennessee

Texas - forum for members in Texas

Virginia - forum for members in Virginia

Washington DC - forum for members in the District of Columbia

West Virginia - forum for members in West Virginia

Midwestern USA

~ Midwest USA - forum for all members in the Midwestern United States

Illinois - forum for members in Illinois

Indiana - forum for members in Indiana

Iowa - forum for members in Iowa

Kansas - forum for members in Kansas

Michigan - forum for members in Michigan

Minnesota - forum for members in Minnesota

Missouri - forum for members in Missouri

Nebraska - forum for members in Nebraska

North Dakota - forum for members in North Dakota

Ohio - forum for members in Ohio

South Dakota - forum for members in South Dakota

Wisconsin - forum for members in Wisconsin

Western USA

~ West USA - forum for all members in the Western United States

Arizona - forum for members in Arizona

California - forum for members in California

Colorado - forum for members in Colorado

Idaho - forum for members in Idaho

Montana - forum for members in Montana

Nevada - forum for members in Nevada

New Mexico - forum for members in New Mexico

Oregon - forum for members in Oregon

Utah - forum for members in Utah

Washington - forum for members in Washington

Wyoming - forum for members in Wyoming

Pacific, Military & US Territories

Alaska - forum for members in Alaska

Hawaii - forum for members in Hawaii

APO's - forum for members in the US Armed Forces stationed overseas

American Somoa - forum for members in American Somoa

Guam - forum for members in Guam

Northern Mariana Islands - forum for members in the Northern Mariana Islands

Puerto Rico - forum for members in Puerto Rico

U.S. Virgin Islands - forum for members in the Virgin Islands

Canada - forum for CHERUBS members in Canada

Mexico - forum for CHERUBS members in Mexico

Europe

Belgium - forum for CHERUBS members in Belgium

Denmark - forum for CHERUBS members in Denmark

France - forum for CHERUBS members in France

Germany - forum for CHERUBS members in Germany

Great Britain - forum for CHERUBS members in England

Greece - forum for CHERUBS members in Greece

Ireland - forum for CHERUBS members in Ireland

Spain - forum for CHERUBS members in Spain

Italy - forum for CHERUBS members in Italy

Lithuania - forum for CHERUBS members in Lithuania

The Netherlands - forum for CHERUBS members in Holland

Northern Ireland - forum for CHERUBS members in Northern Ireland

Norway - forum for CHERUBS members in Norway

Romania - forum for CHERUBS members in Romania

Scotland - forum for CHERUBS members in Scotland

Australia & South Pacific

Australia - forum for CHERUBS members in Australia

New Guinea - forum for CHERUBS members in New Guinea

New Zealand - forum for CHERUBS members in New Zealand

Asia

Hong Kong - forum for CHERUBS members in Hong Kong

India - forum for CHERUBS members in India

Japan - forum for CHERUBS members in Japan

Malta - forum for CHERUBS members in Malta

Singapore - forum for CHERUBS members in Singapore

Turkey - forum for CHERUBS members in Turkey

South America

Brazil - forum for CHERUBS members in Brazil

Chile - forum for CHERUBS members in Chile

Columbia - forum for CHERUBS members in Columbia

Peru - forum for CHERUBS members in Peru

Venezuela - forum for CHERUBS members in Venezuela

Africa

Egypt - forum for CHERUBS members in Egypt

South Africa - forum for CHERUBS members in South Africa

Oman - forum for CHERUBS members in Oman

United Arab Emirates - forum for CHERUBS members in the UAE

Mideast

Israel - forum for CHERUBS members in Israel

Pakistan - forum for CHERUBS members in Pakistan

Saudi Arabia - forum for CHERUBS members in Saudi Arabia

CHERUBS Volunteers

Meet Our Wonderful Volunteers! - Meet our wonderful volunteers and learn how you too can help at CHERUBS!

Volunteer Comments, Recruitment and Information - Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)